30
Mar

0

11th Annual Biomarkers Congress 2016

From February 24th to February 27th 2016, Professor Ivančica Delaš, School of Medicine, University of Zagreb, Croatia has participated in the 11th Annual Biomarkers Congress. The congress is traditionally held in Manchester, United Kingdom, and organized by Oxford Global. The poster titled “Benefits of the Inherited NeuroMetabolic Diseases Network (InNerMeD) in biomarkers development” was presented […]

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17
Feb

0

InNerMeD is a friend of Rare Disease Day 2016

On 29th February 2016 the international rare disease community celebrates the ninth Rare Disease Day, coordinated by EURORDIS. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, […]

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17
Feb

0

10th B4B Workshop and InNerMeD 3rd Open Conference

Brains for Brain Foundation (B4B), the organisation leading the “Inherited NeuroMetabolic Disease Information Network” (InNerMeD-I-Network) project, is pleased to announce that “The 10th B4B Plenary Workshop and InNerMeD Information Network 3rd Open Conference” will be jointly held in Madrid on March 16th – 19th 2016 at the Hotel Rafael Atocha. The meeting aims to enable information exchange […]

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17
Dic

0
InNerMeD participated in the public Consultation on “Gaucher Disease

A Plan to facilitate and encourage research in iNMDs

Since inherited neurometabolic diseases (iNMDs) are rare diseases affecting a small population of patients, their recruitment in biomedical research, including clinical trials, is getting more and more difficult, due to geographical dispersion and economic, methodological and ethical barriers. To provide a plan to facilitate and encourage research in the field of iNMDs, facilitating the identification […]

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12
Ott

0

Crossborder Cooperation Opinion adopted by Health Expert Panel

Sound and timely scientific advice is an essential requirement for the European Commission to pursue modern, responsive and sustainable health systems. To this end, the Commission has set up a multidisciplinary and independent Expert Panel which provides advice on effective ways of investing in health. European Union policy in the field of health is aimed […]

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12
Ott

0

An ERN for Inherited Metabolic Disorders (IMD)

In complex or rare medical conditions, highly specialised healthcare is necessary. European Reference Networks (ERNs) shall bring together specialists from all across Europe to concentrate knowledge and resources. This will provide better care for patients in all of the 28 health systems of the European Union, lead to greater economy of treatment, and help developing […]

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12
Ott

0

Realising European Reference Networks for rare diseases: a preparatory workshop for the rare disease field

The Brains for Brain Foundation (B4B), the organisation leading the Inherited NeuroMetabolic Diseases Information Network (InNerMeD-I-Network) project, participated in the workshop “Realising European Reference Networks for Rare Diseases: a preparatory workshop for the rare disease field”. The workshop, organised by EUCERD Joint Action and the European Commission, was held on 1-2 July, 2015 in Bruxelles. The workshop aimed to support the […]

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