03
Feb

0

Healthcare Transition of Adolescent Rare disease Patients

The process of adjustment of teenage patients, their parents and carers to adult care requires an educational and therapeutic process, also known as transition care. It implies planning and coordination between child and adult carers and increased patient involvement in the management of their rare condition. For more information, please visit this page.

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03
Feb

0

International course “Health care guidelines on rare diseases: Quality assessment”

InNerMeD-I-Network is pleased to inform you that applications are still open for the two-day International course “Health care guidelines on rare diseases: Quality assessment”, organised by Istituto Superiore di Sanità (ISS, Italian National Institute of Health). The course is aimed at promoting guideline quality standards across European Member States and supporting the upcoming European Reference Networks […]

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