Enter in the InNerMeD-I-Network Database

Find out validated information targeted on research, diagnosis and treatment of inherited NeuroMetabolic Diseases

Stay connected with Innermed

Enter in the InNerMeD-I-Network Database

Find out validated information targeted on research, diagnosis and treatment of inherited NeuroMetabolic Diseases

Stay connected with Innermed

collaborating partners

  • Shaare Zedek Medical Center, Israel
  • Children Memorial Institute, Poland
  • Hospital de Clínicas, Brazil
  • Department of Pediatrics and Amsterdam Lysosome Center, The Nederlands
  • King’s College London, United Kingdom
  • University of Oxford, United Kingdom
  • Institut fuer Physiologische Chemie and European Study Group for Lysomal Diseases (ESGLD), Germany
  • Fundació Sant Joan de Déu,Spain
  • University of British Columbia, Canada
  • University of Cambridge, Medical School, United Kingdom
  • Niemann-Pick Disease Group, United Kingdom
  • St Mary’s Hospital, United Kingdom
  • European Brain Council Foundation, Belgium
  • The Society for Mucopolysaccharide Diseases, United Kingdom
  • Gauchers Association Ltd, United Kingdom

latest news

9th Brains for Brain Plenary Workshop and InNerMeD Information Network 2nd Open Conference

9th Brains for Brain Plenary Workshop and InNerMeD Information Network 2nd Open Conference

Mercure Hotel Frankfurt Airport, Frankfurt, Germany – February 5th – 7th, 2015

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InNerMeD Repository as a key tool for reducing the knowledge gap

InNerMeD Repository as a key tool for reducing the knowledge gap

Since last 21st of May 2013, date on which the InNerMeD project was officially kicked off, a great big effort has been done by all partners involved in the project for reducing the fragmentation of information in the fields of iNMDs. Among other things, working primarily through email, teleconference meetings […]

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InNerMeD participated in the public Consultation on “Gaucher Disease”

InNerMeD participated in the public Consultation on “Gaucher Disease”

The draft of the joint proposal to facilitate the clinical investigation of new medicines for the treatment of Gaucher disease in children, released by the European Medicines Agency (EMA) and the United States Food and Drug Administration (FDA) last May, constitutes an issue that has deeply interested the InNerMeD-I-Network from […]

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InNerMeD meeting in the context of the VII Foresight Training Course

InNerMeD meeting in the context of the VII Foresight Training Course

On October 2nd, 2014, a meeting dedicated to the InNerMeD project was held in Castellaneta Marina (Italy). The initiative was part of the seventh edition of the Foresight Training Course, organised by the Gianni Benzi Pharmacological Research Foundation in the context of the European Projects Forum “Nex-t-work” (October 2-4, 2014), […]

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2014 Report on the state of the art of rare disease activities in Europe

2014 Report on the state of the art of rare disease activities in Europe

The annual report on the State of the Art of Rare Disease Activities in Europe is now available online. It was produced by the Scientific Secretariat of the European Union Committee of Experts on Rare Diseases (EUCERD) Joint Action in collaboration with and on input of the rare disease community […]

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