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28
Feb 2014

0

Rare Disease Day – 7th edition

On February 28th, 2014 the seventh edition of Rare Disease Day “Join Together for Better Care” took place and was co-ordinated by EURORDIS (European Organisation for Rare Diseases) at the international level  and by National Alliances and Patient Organisations at the national one. Rare...

14
Feb 2014

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The Croatian National Epilepsy Day

On Friday 14th of February 2014, the National Epilepsy Day was celebrated in Croatia, because Valentine’s Day is not just for lovers: St. Valentine is the patron saint of people with epilepsy. People with epilepsy and their families, persons taking care of them, citizens...

26
Nov 2013

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InNerMeD-I Network website and informative leaflet

InNerMeD-I Network has officially launched its project website that is now available at the following address: mature-chain.flywheelsites.com. The website, accessible to the public thanks to an easy-to-use interface, is aimed to disseminate all the project activities and its results. It will run in parallel...

25
Nov 2013

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InNerMeD participated in the public Consultation on “Gaucher Disease

Rare diseases as a public health priority

Rare diseases prevalence is so low (less than 5 persons every 10,000) and related knowledge and expertise are so limited that special combined efforts are required to address the specific problems and needs of affected patients who generally experience great inequalities among different Member...

20
Giu 2013

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InNerMeD Information Network

InNerMeD NCC Meeting, Frankfurt, 17th September 2013

Hotel Holiday Inn Airport-North The Frankfurt meeting gave to project partners the opportunity to review all work plans related to the individual WPs in the framework of the overarching InNerMeD-I-Network objectives. In particular, the meeting represented the ideal environment for giving an overall presentation...

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