innermed project overviewThe Project “Inherited NeuroMetabolic Disease Information Network” (InNerMeD-I-Network, 2012 12 12, Second Health Programme 2008-2013) is an European project, started on the 1st of April 2013. It aims to create a multimedial network of information targeted on research, diagnosis and treatment of inherited neurometabolic diseases (iNMDs) and based on the collection and exchange of validated information among scientific communities, health professionals, patients, patient associations public health authorities, pharmaceutical companies and other interested parties.

The core Network is represented by the initial partners while other research centres and experts’ groups will be included on the basis of their competencies to continuously help grow the Network. The Network also complies with the criteria for Networks stated in European Health Programmes on Rare Diseases (European Reference Network, ERN) and in the Paediatric Regulation (European Network of Paediatric Research at the European Medicines Agency, Enpr-EMA).