MAIN EU PROJECTS IN THE FIELD of iNMDs:
Scientific interest for iNMDs throughout the entire European community has rapidly grown in the last years as witnessed by the number of projects funded.
DG SANCO PROJECTS ON iNMDs
Following the Calls for Proposals under the 2012 work plan of the Second EU Health Programme (2008-2013), 8 are the projects under the action “Prevention of major and rare diseases” which have been selected for funding by the European Commission – DG Health and Consumers. Among these, there are 5 projects on rare diseases and in particular, 3 out of these selected 5, are projects on iNMDs, stressing the importance of this topic and highlighting the necessity to improve knowledge, increase awareness, spread, information, monitoring diseases progression and response to the available therapeutic approaches. They are aimed to set up networks and develop Rare Disease Patient Registries, as key instruments for increasing knowledge, supporting clinical and epidemiological research, improving overall quality of care, quality of life and survival of patients in the field of rare diseases.